Lymphedema Family Study - the financial crises

Genetic studies program at the University of Pittsburg. Robert E. Ferrell, Ph.D., David N. Finegold, M.D., Kara Levine, M.S., and Kelly Knickelbein, M.S. at the Department of Human Genetics in collaboration with Judith Esman, M.D. are working to determine the genetic basis of primary (or inherited) lymphedema.

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Lymphedema Family Study - the financial crises

Postby patoco » Wed Feb 01, 2012 7:14 am

URGENT :!: :!: :!: :!:

Family members, last Fall I wrote a post about the desperate financial situation of the Lymphedema Family Study at the University of Pittsburg.

When I got active online back in 2003, there was only one confirmed gene - VEGFC and one suspected FOXC2.

Now with the one I shared about yesterday, there are eight. With many more being extremely close to being found.

Now, it appears d-day is looming closer.

I received this note yesterday from the director, Dr. Finegold.

We always complain about the medical world not caring, and I wish I could convey Dr. Finegold's dedication in this post. You'll never find anyone more committed to the lymphedema world then he is.

This is our chance to stand up and be counted - and - to show that we believe our lives to be worth being cured. If there is anything, anything you can do, please follow the link to the study and help.

Lymphedema Family Study

Here is an excerpt from his note:

"I'm in a situation where I need to reach out to people in the lymphedema community.

I believe we have identified an opportunity to significantly affect
wound healing by stimulating lymphogenesis in preparations of adipocyte
stem cells or a mesenchymal stromal fraction prepared from adipocytes.
I believe this may also possibly be an avenue to the effective treatment of lymphedema.

At this point in time, we don't have sufficient funding to do the
experiments for proof of principle. I need to identify a commercial or
foundation entity who might be willing to seed us for six months or so
to solidify our preliminary data."


Dr. Finegold
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